Perspectives of Persons with Memory Changes and Care Partners for Reducing Barriers to Community Wellness Programs

Abstract

Exercise and healthy diet can improve the well-being of community-dwelling persons with memory changes (PWMC) (including dementia) and care partners (CPs). Existing research demonstrates that PWMC and CPs benefit from nutrition and exercise for frailty and sarcopenia prevention. Yet, needs and preferences for wellness programs are still unknown. The objective of this eight-month online survey study was to explore PWMC (n=24) and CPs’ (n=46) perspectives on nutrition/exercise barriers, and preferences for program content and format to inform a community wellness program. PWMC self-reported, while CPs reported for themselves and their cared-for person with dementia (CPWD). Descriptive analyses revealed that 78% of PWMC, 64% of CPs, and 39% CPWDs were interested in a wellness program that combined nutrition and exercise. Content preferences were diverse (e.g., 45% of CPs were interested in yoga/Pilates, but only five percent of CPWD were interested). Over half of participants preferred online delivery for nutrition information (55% PWMC, 54% CP). Group fitness was popular for exercise among all groups. In addition, participants prioritized attending as dyads twice or more per week, closeness to home, reasonable cost, knowledgeable instructors, fun social environment, and beginner-friendliness. To conclude, flexibility in program content and format will meet diverse needs and preferences.